Exploring Social Well-Being Challenges and Social Impacts Among Thalassemia Carriers

Abstract

This study explores the social well-being challenges and broader social impacts experienced by individuals who are carriers of thalassemia. Despite being asymptomatic, thalassemia carriers often face social stigma, misconceptions, and challenges in areas such as marriage, relationships, and community acceptance. The research aims to identify key social barriers, assess their effects on psychological and emotional well-being, and understand how cultural perceptions influence the lives of carriers. By highlighting these issues, the study seeks to promote awareness, reduce stigma, and inform policies and interventions that support the social inclusion and well-being of thalassemia carriers.  In-depth interviews were conducted with 2 thalassemia carriers having aged above then 12 years and 8 with caregiver of thalassemia carriers having age below then 12 years.  The interviews were recorded, transcribed, and analyzed using thematic analysis to identify patterns and themes related to social support, cultural practices, and health management.